Every now and again an old friend or acquaintance will come to mind and I wonder what they are doing now…where they are. Sometimes I Google to find out. Maybe it’s a way of measuring the length of my days in years? Some time ago I found an artist friend through Facebook that I’d known a dozen years ago and wrote about the encounter in my June 13, 2012 post, art then / art now. A few weeks ago I reconnected with another friend through Facebook that I’d known in the glorious, early 1970s (when some of us were still young and others, not yet born). That was great fun.
Last week…in a more serious mood…I looked for a person I’d known six years ago in a cancer support group. I’d been thinking about him for a while. I wanted to thank him for all the invaluable help he’d given me—help that changed the course of my recovery for the better. We both have a form of incurable lymphoma that can capriciously become active or lie inactive at will. I’ve been in remission for five years and wanted to know how he was. I Googled him, and found his name in connection with a cancer support group’s phone listing. I called and was delighted to find that he is a survivor and continuing with his cancer support mission. It felt good to send a message of thanks and affirmation. Many cancer survivors like to pay it forward, including me.
A few days ago, I thought about two persons I’d known from my days in the art world. Despite that association ending badly, I Googled them hoping to find an avenue for constructive reconnection. To my dismay, I found pages and pages of articles linking them and the gallery to fraudulent misappropriation of federal grant funds from 2004-10. I was shocked and wanted to know what had happened. I began reading the articles. When I got to the FBI Press Release dated December 14, 2011— what I considered the most reliable—I stopped to take stock. My partner and I had known these women for many years. Until my last show in their gallery in 2002, we had considered them close friends. The exhibition—Inheritance: art and images beyond a silenced genocide—was a production showcasing Armenian-American artists and the Armenian people. It was nearly a year’s work and a major undertaking for me as artist, curator and producer.
A few weeks before the exhibition opened, our tax preparer urged us to ask the two women for an accounting of the money contributions that had been donated toward funding the show. Asking for an accounting touched off a firestorm of angry accusations toward us, and threats to cancel the show, which put me in a state of ongoing anxiety for the two months of the show’s run in the gallery. Naively, we assumed the contributions that came in from our contacts were earmarked and set aside. We had virtually no understanding of non-profit gallery operations at that time, and no idea of the potential threat this request to the gallery directors would be.
Historically, the gallery had been an important outreach to the community and an alternative for rising artists to the traditional, market-based gallery system. I do not know how the current situation happened, when, or why it happened. I only know my own experience in what would be my last show there. It had been my labor of love. We were fortunate to receive in-kind donations that included a four-color catalog, marketing/advertising help and a marvelous array of catered, Armenian food and drink for the opening reception.
Everything was in order, but the enmity that ensued—the demands and constant threats to close the show at a moment’s notice made a basket case of me for most of that time. Trust was broken on all sides. What had been friendship for many years became a battleground and a living hell. I didn’t understand it then and mourn the emptiness of it all now. I am sorry to have lost the friendship we had with these two very interesting women, but in light of this new information I am thankful to be on this side of current events…thankful…but still sad to have all that collateral damage sitting in the roadway of my past. I cannot think of it without great regret for relational carelessness and wasted time.
Looking back, I remember the government shutdowns of arts funding hitting the small enterprises hardest. I am not excusing anyone or anything, merely seeing two sides of what has become the vanishing coin of the power-elite. I have compassion for these two people, regardless of circumstances, because I knew them at their sincere best…maybe not as deeply as I’d thought, but well enough. We are all looking for our way…our path in life. I am sorry about detours and sink holes and broken pavement. I do not know where these women are today, or how they are coping. There is nothing online past December 2011, so I assume the allegations are still pending. I am a bit of an idealist. I love resolution and reconciliation. I would like that with these two, but I dare not dream of it. I don’t really know how to swim with the bigger fish and my skin has not yet hardened. ~¿
Waiting
something on my mind
Tags: Cancer, Courage, Death, Healing, Healthcare, Life, loss, Lymphoma, suffering, Truth
Last week, in an Oprah Winfrey interview we heard Lance Armstrong, the world-class Olympic cyclist confess to having used several performance enhancing drugs to achieve his string of seven Tour de France medals during the period 1999 to 2005. These medals were stripped from him late last year, and recently the Olympic bronze medal from the 2000 Sydney games as well. Lance is a proud man, a fighter—a winner at all costs sort of person. Oprah did a magnificent job of drawing him out from shadow to full light truth. She did this by offering him kind, compassionate support all the way home. He needed that and she, out of her storehouse of experiences, could give it. I don’t think she skipped a beat.
For two hours I watched and listened to two amazing persons reveal themselves to the world: one a fallen celebrity newly discovering his feet of clay, the other a celebrity interviewer/entrepreneur who has never hidden hers, even from herself. This is a distinction of importance as I look through the pages of my own book of life. I find identity in both areas and I am not at ease.
I am annoyed with Lance Armstrong, not for the doping, arrogant lying and power-driven will to win, win, win, but for the cancer mythology he helped to perpetuate through the LIVESTRONG theme of the foundation bearing his name. The foundation has done good work and raised millions of dollars for research, but it did that based on Armstrong’s own cancer experience turned into the thematic slogan: LIVESTRONG. Many thousands of people carried this message to heart—persons unlucky enough to have contracted the disease, were caretakers for them, or otherwise touched by the disease.
In 1996, Armstrong was diagnosed with late-stage, metastatic, testicular cancer that had spread to his abdomen, lungs and brain. He ignored the warning signs at the early, easily treatable stage of this cancer, common in men aged 15-35. Had his body not been as fit as it was, he may very well have been a statistic instead of a survivor of heroic proportions. LIVESTRONG worked for him because it was his personal modus operandi. People want and need heroes. He was a winner, so the slogan became a word to live by for many, but not for me. I survived cancer and didn’t have the strength to live strong for a very long time. I simply survived. It took many years to overcome the side effects of the treatment, some of them permanent. I am still surviving. There is a 50/50 chance that my cancer will return at some point. I live with that daily. Is that living strong or living true?
The yellow LIVESTRONG wristband always turned me off. I didn’t know what it meant and still don’t. In the absence of broader knowledge of this disease, responsibility for outcome tends to shift to the sufferer. How does one live strong when the drugs that flow intravenously through the body every three weeks (or less) leave you chemically depressed, thin as a bone, bald as a bat, sick and wobbly as a toddler learning to walk? Does that mean soldiering on through, fighting on through, or what? Cancer is still incurable. Oncology speaks of remission these days, not cure. So, is remission the goal of living strong? Is that what is meant by “beating it?” I don’t know. We see the happy faces of cancer survivors in commercials and advertising. We don’t see the thousands of people permanently disfigured and/or impaired by the side effects of these chemical cocktails, nor do we understand that each recurrence of the disease further weakens the body’s ability to counter. We don’t see the epitaphs of those who apparently didn’t live strong enough to survive. We aren’t ready yet to admit that the war on cancer, started 40+ years ago by President Nixon, has not produced cure. Treatments are better and drugs are becoming smarter, but it is still treatment that will be deemed barbaric some hundred years or so in the future.
I would like to hear another interview where Armstrong takes responsibility for misleading the public into thinking a catchy jingle could make us all strong survivors. We aren’t. If he does this he will be a true leader and a strong advocate. Cancer is still a dark thief riding a dark horse in the darkest of nights for most of us. Both my niece and my sister lived their cancer as best they could…some might say strong, but the endings were not pretty. After Adopted Daughter died of cancer, I found the yellow bracelet among her things. I recoiled at the sight of it and tossed it out. My loss was too great to even look at the talisman she thought would help her. If I had it today, I’d take a scissor and sever the LIVE from the STRONG. I’d throw out the STRONG and pin-up the LIVE in my studio to remind me of what surviving is all about, at least for me: living authentically, gracefully and joyously.
Postscript:
1) My personal cancer story, Dying to Live: My Cancer Odyssey, was written in 2007 and can be seen on my website: www.inheritanceproject-2.com – project 5. 2) Reports on Lance Armstrong, the foundation, the interview, other cancer survivor’s opinions can easily be found online. Your comments to this posting are welcome.